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" Thanks for stoppin in to my little page here on EZFolk. I write and record all the songs and music at home . I sing and play mostly acoustic stuff but have been known to delve into some weird and wonderful sounds. My music tracks are $0.99 each here on EZFolk which I will personally donate to the following worthy cause ~~~~~~~~~~~~~~~~~~ http://miraclesthroughmusic.org ~~~~~~~~~ Code's story ..... Code was born with a debilitating diseases called Epidermalyasis Bullosa (EB). This is genetic disorder that affects the skin. Severe blistering occurs with just the slightest touch, or irritation from clothes ect..EB is incredibly painful. If you could remember your worst burn, than magnify that by ten, and cover your entire body you would then only begin to understand the pain & suffering experienced with EB. When born the trauma of a natural birth literally skinned him alive, and its been a difficult struggle since. Constant visits to one specialist after another, none knowing exactly what course of action to take, as EB has no cure, and all that can be done are measures to just try and ease his pain. I first met Code as an infant, not knowing the family well at that time, I acknowledged the disability and moved on with my life. Years later we crossed paths again, only to realize that Code and his mother were basically homeless, we offered our spare room. A year or two passed, and with the apartment not being a large one, my wife and I moved on, leaving the apartment to Code and his mother. Years passed, my wife and I moved to Utah, started our own family, and wanting to be near family members, while raising our kids, moved back to the SF. bay area. At some point I went to find my friend Code, only to find that they had been evicted from the apartment, and were now in a small two room trailer in a less than desire able neighborhood. Code is now 23 years old. He needs and deserves a place of his own that's clean, safe, and set up to accommodate the special needs associated with EB. A bi-weekly treatment of soaking, and full body wraps are being done at a local hospital. Volunteers drive him to and from these treatments. Ideally I would like to see his future residence outfitted so Code could soak himself at his own leisure, and in the privacy of his own residence. A health care worker would be needed to wrap Code, but the difficult process of driving to and from treatments would be eliminated. This young man is the Gentlest soul I have ever encountered. He has a loving nature, an infectious smile, and laugh. I would like to create an atmosphere where both of these can be cultivated, and nurtured. With your donation to Miracles Through Music, this young man can blossom. Code can live in a clean, healthy environment, and some of his suffering be eased. Together WE can make a tremendous difference Thank You, ST http://miraclesthroughmusic.org
PS. For those of you that have already downloaded my stuff for free, will you for God's sake send something to this poor lad ! A buck or two in an envelope and a stamp won't break ya ! Just take the time now and do it, he needs it and it will make you feel good.
The address is ~~~~~~~~~~~~~~~~~~~~
Miracles Through Music
75 Leisure Park Circle
Santa Rosa, CA 95401
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